Epidemiology Data Resource Center

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International Bone Marrow Transplant Registry Database (IBMTR)

Topic/focus:  Disease - Specific / Registry
Year(s):  1968 - present
Source:  Center for International Blood and Marrow Transplant Research (CIBMTR), Medical College of Wisconsin
Study and sample characteristics:  Raw data from medical records
Universe:  Allogenic bone marrow transplants worldwide
Variables:  n/a
Access:  Investigators must request data, which is subject to approval by CIBMTR, summary data is available on the website
Cost:  In most circumstances, there is no cost
Key web links:  Center for International Blood & Marrow Transplant Research
Primary Institutional Contact:  CIBMTR Data Request Information (inforequest@mcw.edu)

Summary:  Contains data on allogeneic bone marrow transplants--transplants in which the patient receives bone marrow from a related or unrelated donor--collected from over 450 bone marrow transplant centers worldwide. Information on over 40% of all allogeneic transplants performed worldwide is captured. The database as of 2001 includes information for over 76,000 patients receiving bone marrow transplants for more than 200 diseases. Patients are followed longitudinally, with current follow-up for greater than 90% of all patients transplanted since 1986.

 

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