Epidemiology Data Resource Center

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National Survey of Children with Special Health Care Needs

Topic/focus:  General Health and Nutrition
Year(s):  2005 - 2006; 2009 - 2010
Source:  Maternal and Child Health Bureau
Study and sample characteristics:  Interview
Universe:  Children with special health care needs under 18 years of age
Variables:  n/a
Access:  Registration and data use agreement required, online summaries are available
Cost:  Free
Key web links:  National Survey of Children with Special Health Care Needs
Primary Institutional Contact:  EDRC Coordinator (tchelius@mcw.edu)

Summary:  The National Survey of Children with Special Health Care Needs (NS-CSHCN) is a national survey that was conducted by telephone in English and Spanish for the first time in 2001. The survey was conducted a second time in 2005 - 2006 and for a third time in 2009 - 2010. The survey provides a broad range of information about the health and functional status of children with special health care needs collected in a manner that allows for comparisons between states and at the national level. Telephone numbers are called at random to identify households with one or more children under 18 years old. Each child in the household is screened for special health care needs using the CSHCN Screener. In each household, one child was randomly selected to be the subject of the interview. The survey results are weighted to represent the population of non-institutionalized children with special health care needs 0 - 17 nationally and in each of the 50 states plus the District of Columbia.
 

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