Epidemiology Data Resource Center

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Disease - Specific / Registry

Autologous Blood and Marrow Transplant Registry Database (ABMTR)

Contains data collected on recipients of autologous bone marrow and peripheral blood stem cell transplants--those in which a portion of the patient's own blood or bone marrow is removed before, and returned to them after, high dose radiation and/or chemotherapy. Over 380 institutions in the United States, Canada, Mexico, and South America participate. About 65% of auto- transplants performed in these regions are reported to the ABMTR. The present database includes information for more than 66,000 patients transplanted. Nearly 4,500 new patients are registered yearly.

Demographic Health Survey (DHS)

DHS population-based surveys provide reliable and accurate information on HIV, malaria, gender, family planning, maternal and child health, and nutrition in more than 90 countries. They offer statistics on the most common indicators, as well as trends and cross-country comparisons. Since 1984 more than 220 surveys have been carried out in more than 90 countries. The survey reports and survey data are free to everyone.

International Bone Marrow Transplant Registry Database (IBMTR)

Contains data on allogeneic bone marrow transplants--transplants in which the patient receives bone marrow from a related or unrelated donor--collected from over 450 bone marrow transplant centers worldwide. Information on over 40% of all allogeneic transplants performed worldwide is captured. The database as of 2001 includes information for over 76,000 patients receiving bone marrow transplants for more than 200 diseases. Patients are followed longitudinally, with current follow-up for greater than 90% of all patients transplanted since 1986.

National Automotive Sampling System (NASS)

NASS provides NHTSA an efficient and reusable resource with which to conduct data collection representing a broad spectrum of American society. Using a core set of crash data components, NASS has proven a reliable resource for a variety of agency sponsored electronic data collection efforts over the past 10 years. General Estimates System data come from a nationally representative sample of police reported motor vehicle crashes of all types, from minor to fatal. The information is used to estimate how many crashes of different kinds take place, and what happens when they occur. The Crashworthiness Data System has detailed data on a representative, random sample of thousands of minor, serious, and fatal crashes.

National Electronic Injury Surveillance System

CPSC’s National Electronic Injury Surveillance System (NEISS) is a national probability sample of hospitals in the U.S. and its territories. Patient information is collected from each NEISS hospital for every emergency visit involving an injury associated with consumer products. From this sample, the total number of product-related injuries treated in hospital emergency rooms nationwide can be estimated.

National Trauma Data Bank (NTDB)

NTDB collects trauma registry data from participating trauma centers on an annual basis. Data are aggregated and used to produce annual reports, hospital benchmark reports, and data quality reports.

National Violent Death Reporting System (NVDRS)

The National Violent Death Reporting System (NVDRS) links records to describe in detail the circumstances that may contribute to a violent death. It also identifies violent deaths occurring in the same incident to help describe the circumstances of multiple homicides or homicide–suicides and provides timely preliminary information on violent deaths. NVDRS better characterizes the relationship of the victim to the suspect. NVDRS currently operates in 18 states.

SEER-Medicare

The SEER-Medicare data reflect the linkage of two large population-based sources of data that provide detailed information about Medicare beneficiaries with cancer. The data come from the Surveillance, Epidemiology and End Results (SEER) program of cancer registries that collect clinical, demographic and cause of death information for persons with cancer and the Medicare claims for covered health care services from the time of a person's Medicare eligibility until death.

Surveillance, Epidemiology, and End Results (SEER), Cancer Incidence Public-Use Database

NCI's SEER database is a cumulative collection of cancer incidence and survival data from 11 population-based cancer registries covering approximately 14 percent of the U.S. population. Registry catchment areas were selected based on their ability to operate and maintain a high quality population-based cancer reporting system and for their epidemiologically significant population subgroups. SEER's population is comparable to the general U.S. population with regard to measures of poverty and education, but the SEER population tends to be somewhat more urban and has a higher proportion of foreign-born persons. As of 1996, information on more than 2.3 million in situ and invasive cancer cases is included in the SEER database, and approximately 160,000 new cases are accessioned each year. The SEER registries routinely collect data on patient demographics, primary tumor site, morphology, stage at diagnosis, first course of treatment, and follow-up for vital status.

Uniform Crime Reporting Statistics

The FBI has gathered crime statistics from law enforcement agencies across the Nation that voluntarily participate in the Uniform Crime Reporting (UCR) Program since 1930. These data have been published each year, and since 1958, have been available in the publication Crime in the United States (CIUS). As a supplement to CIUS, the FBI, in cooperation with the Bureau of Justice Statistics, provides this site that allows users to build their own customized data tables. The UCR Program collects statistics on violent crime (murder and non-negligent manslaughter, forcible rape, robbery, and aggravated assault) and property crime (burglary, larceny-theft, and motor vehicle theft). By congressional mandate, arson was added as the eighth Part I offense in 1979. Arson statistics are not available for access on this site. By using the table-building tool, users can specify offenses, locality (city, county, state), and year(s).

Web-Based Injury Statistics Query and Reporting System (WISQARS)

CDC’s WISQARS™ (Web-based Injury Statistics Query and Reporting System) is an interactive, online database that provides fatal and nonfatal injury, violent death, and cost of injury data from a variety of trusted sources. Researchers, the media, public health professionals, and the public can use WISQARS™ data to learn more about the public health and economic burden associated with unintentional and violence-related injury in the United States.

Wide-Ranging Online Data for Epidemiologic Research (CDC WONDER)

CDC WONDER -- Wide-ranging Online Data for Epidemiologic Research – is an easy-to-use, menu-driven system that makes the information resources of the Centers for Disease Control and Prevention (CDC) available to public health professionals and the public at large. It provides access to a wide array of public health information. CDC WONDER furthers CDC's mission of health promotion and disease prevention by speeding and simplifying access to public health information for state and local health departments, the Public Health Service, and the academic public health community. CDC WONDER is valuable in public health research, decision making, priority setting, program evaluation, and resource allocation. With CDC WONDER you can: 1) Access statistical research data published by CDC, as well as reference materials, reports and guidelines on health-related topics; and 2) Query numeric data sets on CDC's computers, via "fill-in-the blank" web pages. Public-use data sets about mortality (deaths), cancer incidence, HIV and AIDS, tuberculosis, vaccinations, natality (births), census data and many other topics are available for query, and the requested data are readily summarized and analyzed, with dynamically calculated statistics, charts and maps.

Wisconsin Cancer Reporting System (WCRS)

The Wisconsin Cancer Reporting System (WCRS) is a population-based cancer registry. It provides direct access to information about cancer incidence and mortality in Wisconsin. The WCRS contributes to: 1) The understanding of cancer incidence and mortality in Wisconsin; 2) The development of prevention and treatment programs, and; 3) The ultimate goal of reducing cancer mortality.

Wisconsin CODES

The Wisconsin CODES Project is located at the Center for Health Systems Research and Analysis at University of Wisconsin - Madison. In Wisconsin, the CODES linkage project operates as a multi-agency collaboration. Hospital and Emergency Department data from the Wisconsin Hospital Association are linked with WDOT Crash data using probabilistic linkage and studied by analysts at the Center for Health Systems Research and Analysis. The Wisconsin CODES Project has Public Use data files available to researchers interested in studying the health outcomes associated with vehicular crashes in Wisconsin. All persons wishing to use the data are required to fill out the confidentiality form.

Wisconsin Crash Facts

This site provides statewide information on the human consequences of traffic crashes. Reports are offered in several levels of detail, including the number and type of crashes, type of vehicles involved in crashes, severity of injuries, and information about the drivers involved.

Wisconsin Interactive Statistics on Health (WISH)

WISH gives you information about health indicators (measures of health) in Wisconsin. WISH allows policy makers, health professionals, and the public to submit questions (requests for data) and receive answers (tables) over the Internet. To construct answers to your questions, WISH uses protected databases containing Wisconsin data from a variety of sources. Most modules contain data for multiple years and geographic areas.

Wisconsin Violent Death Reporting System (WVDRS)

The Wisconsin Violent Death Reporting System (WVDRS) is a statewide, active surveillance system that collects detailed information on all suicide deaths, all homicide deaths, deaths of undetermined intent, deaths resulting from legal intervention, and deaths related to unintentional firearm injuries that occur in Wisconsin. See also the National Violent Death Reporting System.

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Page Updated 01/14/2014