Patient at Risk: Wisconsin's EIF Repository Program for Children with Special Healthcare Needs

Project Overview

6th Funding Cycle Development Award
     Project Start Date: 2/1/2011
     Project End Date: 1/31/2013 - No Cost Extension Through: 6/30/2013

Goal: To further develop Wisconsin's web-based Emergency Information Form (EIF) Program for Children with Special Healthcare Needs and to promote and train a critical mass of families, support organizations, and medical personnel in its use.

Award Amount: $199,935

Community Partners:
Primary Community Partner: Kia LaBracke, Executive Director of Wisconsin Chapter of American Academy of Pediatrics Foundation (WIAAP Foundation)
Additional community partners:

• American Family Children's Hospital
• Baraboo District Ambulance Service
• Children's Hospital of Wisconsin
• General Federation to Women's Club-Oconomowoc Junior Woman's Club
• Gundersen Lutheran Medical Center
• Regional Centers for Children & Youth with Special Health Care Needs
• St. Joseph's Children's Hospital
• St. Mary's Hospital
• St. Vincent's Hospital
• Waukesha Fire Department
• West Allis Fire Department
• Wisconsin Emergency Medical Services for Children (EMSC)

Academic Partners:
Primary Academic Partner:

• Kathleen Beckmann Sluzenski, MD - Department of Pediatrics (Emergency Medicine) (starting September 2011)
• Kenneth Yen, MD, MS - Department of Pediatrics (Emergency Medicine) (through August 2011)

Additional Academic Partner: Sara Slowik, PA, Department of Pediatrics (Emergency Medicine)

Project Progress Summary Reports:
    Project Progress Report Summary 2/1/2011 - 9/30/2011
    Project Progress Report Summary 10/1/2011 - 9/30/2012

Affiliated Web Pages:
    American Family Children's Hospital
    Baraboo District Ambulance Service
    Children's Hospital of Wisconsin
    General Federation to Women's Club-Oconomowoc Junior Woman's Club
    Gundersen Lutheran Medical Center
    Patient at Risk
    St. Joseph's Children's Hospital
    St. Mary's Hospital
    St. Vincent's Hospital
    Waukesha Fire Department
    West Allis Fire Department
    Wisconsin Chapter American Academy of Pediatrics Foundation (WIAAP Foundation)
    Wisconsin Emergency Medical Services for Children (EMSC)

Project Dissemination Efforts (as reported by project partners)

• Outreach Materials / Events
  • Developed and distributed 1300 Patient at Risk patient toolkits (versions 1-3) and brochures
  • Patient User Guide – a step by step process for parents to follow when entering their children’s data into the database
  • Developed and distributed 1400 Physician/EMS kits
  • Developed a one-page Talking Points handout
  • Developed a social media site to market the Patient at Risk Program
  • Training sessions with Gundersen Lutheran (Feb 2012), Saint Vincent's Hospital (April 2012), CHW Emergency Department Physicians (March 2012), West Allis Fire Department (March 2012), Waukesha Fire Department (March 2012), CYSHCN Regional Centers (April 2012), Pediatric Champions Group (Am Family/UW Health/EMS) (October 2012)

  • Press release disseminated through the Fire Chief’s newsletter and a statewide EMS email distribution (September 2012)

  • Attended Circles of Life Conference (April 2012), CYSHCN Collaborators Annual Meeting (April 2012), Paramedic System of WI Conference (Sept 2012), Care in the Community Event (Sept 2012), AHW-WPP Leading the Way - Joint Conference (Sept 2012), and Family Respite Care Services (Oct 2012) to disseminate program materials and resources
• Presentations
  • Presented about the program to Snappin' Ministries (Feb 2012), West Allis/West Milwaukee School District Special Needs Lead Teachers and District Nurse (April 2012), West Allis/West Milwaukee School District Special Needs PTA (May 2012), West Allis Library (June 2012), Baraboo Library (June 2012), and CDF Summer Respite Camp (Aug 2012)