Training Lay Trainers:
A Strategy To Disseminate Care Coordination Skills to Families of CYSHCN

Project Overview (PDF)

7th Funding Cycle Development Award

Project Start Date: January 1, 2012
Project End Date: December 31, 2013 - No Cost Extension Through: June 30, 2014
Award Amount: $200,000

Project Goal Statement: To train a cadre of Lay Trainers who are themselves parents of children and youth with special health care needs (CYSHCN) to teach care coordination skills and behaviors to other families of CYSHCN using a recently developed care coordination curriculum.

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  Community Partner(s):

Primary Community Partner: Sharon Fleischfresser, Wisconsin Department of Health Services, Children and Youth with Special Health Care Needs Program
Additional Community Partner Organization Names:

  • Children's Hospital of Wisconsin-Special Needs Program
  • University of Wisconsin-Milwaukee School of Education
  • Wisconsin Department of Children and Families-Bureau of Milwaukee Child Welfare
  Academic Partner:

Primary Academic Partner: John Gordon, MD, Department of Pediatrics

  Project Progress Summary Reports:
  Affiliated Web Pages:
  Project Dissemination Efforts (as reported by the project partners)
  • Outreach Materials / Events
    • Developed Training Manual for teaching Bridge to Independence curriculum to Lay Trainers, including handouts, PowerPoint presentations, and scripts for partners teaching Lay Trainers
    • Radio interview with WUWM program UWM Today (February 2013)
    • Translated the Bridge to Independence curriculum from English to Spanish
    • Presentation of the curriculum to 30 Birth-to-Three, Head Start and other community agency providers at Indianhead Community Action Agency (January 2014)
  • Presentations
    • Presentation at the Circles of Life Conference to families of CYSHCN and providers (April 2013)
    • Presentation at the HWPP CEnR Conference (September 2013)
    • Symposium presentation at the American Academy of Cerebral Palsy and Developmental Medicine conference (October 2013)
    • Two presentations at the American Association for Adult and Continuing Education conference (November 2013)
  • Publications
    • Paper accepted in the Adult Learning Journal titled “Learning How to Teach: Relationship Between Life Experience and Learning”
Contact Us

Advancing a Healthier Wisconsin Endowment Healthier Wisconsin Partnership Program (HWPP)
(414) 955-4350 |