Adolescent and Young Adult (AYA) Cancer Program
A partnership of the MACC Fund Center at Children's Hospital of Wisconsin and the Froedtert & MCW Cancer Center, the AYA Cancer Program mission is to contribute to improved survival rates and quality of life across the cancer care continuum for AYA cancer survivors in Wisconsin, and throughout the region, through the development of an AYA Cancer Program of Excellence.
AYA Program Objectives
Our AYA cancer program will provide you quality and supportive care resources from diagnosis through survivorship, with focus on:
• Clinical trial education;
• Fertility preservation counseling;
• Health insurance/financial counseling;
• Psychosocial support and spiritual care;
• Transition to survivorship services
Provide AYA education to all healthcare professionals.
Build a strong, interdisciplinary AYA Research Program and improve access to clinical trials for AYA patients.
Community Outreach & Collaboration
Serve as an AYA Cancer Center of Excellence for southeastern Wisconsin, the state, the region and beyond and support the AYA cancer community by partnering with local, regional, and national organizations and programs to support AYAs, including activities like the Young Adult Oncology Group (YAOG).
Other Resources and Information
Open the sections for more information, documents and links.
Fertility Preservation & Sexual Health Educational Resources
- Sexual Health During Cancer Treatment
- AYA Fertility Handout
- AYA-Fertility Preservation (females)
- AYA Sperm Cryo Preservation (male)
- AYA Program Satisfaction Survey
Links to AYA Education Modules
Login and search for these modules:
- Adolescent & Young Adult (AYA) Cancer Care Awareness: A Unique Population (EDS1600753)
- Adolescent & Young Adult (AYA) Considerations in Cancer Treatment (EDS1700044)
- Adolescent & Young Adult (AYA) Practical and Emotional Needs (EDS1700045)
Login and search for these modules:
- Adolescent & Young Adult (AYA) Cancer Care Awareness: A Unique Population (GNED60549)
- Adolescent & Young Adult (AYA) Considerations in Cancer Treatment (GNED60551)
- Adolescent & Young Adult (AYA) Practical and Emotional Needs (GNED60550)
Click links or images to download the AYA resource book.
Current AYA Cancer Supportive Care Trials at Children’s Hospital of Wisconsin and Froedtert and the Medical College of Wisconsin:
1. Fatigue in Young Adults with Cancer: Step-up Intervention for Self-Management of Fatigue in Young Adults Receiving Chemotherapy (NIH P20 Exploratory grant P20NRO15339; PI: Jeanne Erickson, PhD & Co-Is: Drs. Ann Swartz, Melinda Stolley, John Charlson, Kristin Bingen).
The goal of this study is to evaluate a 12-week physical activity intervention to improve self-management of fatigue in AYAs receiving chemotherapy. The intervention will include components of education, negotiated collaboration to set individual physical activity goals during chemotherapy cycles, and tools for self-monitoring physical activity. Open at CHW and Froedtert.
- Bingen, K., Hoag, J., & Karst, J. (2017, Feb.). Development of an adolescent and young adult (AYA) cancer program: Meeting the needs of a vulnerable age group from diagnosis through transition to survivorship. Symposium presentation, Advances in clinical care models for transitioning adolescent/young adult patients with cancer, at the 14th annual American Psychosocial Oncology Society Conference in Orlando, Florida.
- Erickson, J.M., Bingen, K., & Charlson, J. (2017, April). Physical activity preferences and needs of adolescents and young adults with cancer during chemotherapy. Poster session at the Midwest Nursing Research Society Conference in Minneapolis, MN.
- Jemison, L., Erlitz, T., Myers, K., Bingen K., & Charlson, J. (2017, May). Developing an adolescent and young adult cancer pilot program: A multidisciplinary collaboration between a pediatric and adult cancer program. Poster session presented at the Oncology Nursing Society Conference, Denver, Colorado.
Please contact us for more details and to register for these events.
Upcoming 2020 YAOG Meetings and Events:
Due to COVID-19, the AYA Cancer Program & Young Adult Oncology Group are not offering in-person social activities or events. There are many organizations hosting AYA virtual social activities listed below. To stay up to date on in-person & virtual social activity opportunities, consider joining the Young Adult Oncology Group on Facebook (search “YAOG” or “@YAOGMidwestWisconsin“) or join our mailing group by emailing firstname.lastname@example.org.
- Teen Cancer America (13-24 yr olds): https://teencanceramerica.org/
- Elephants & Tea (15-45 yr olds): https://elephantsandtea.com/
- The COVID-19 page has a list of virtual events hosted by many national AYA programs.
- Lacuna Loft: https://lacunaloft.org
- Gilda’s Club Madison: https://www.gildasclubmadison.org/
Past Events (2019):
- Admirals Hockey Game on January 22 2019
- Snowshoeing at Schlitz Audubon Nature Center on February 2 2019
- Sarcoma Conference - April 6, 2019 at Boerner Botanical Gardens
- Midwest Young Adult Cancer Conference - April 27, 2019 in Madison, WI
- Indoor Rock Climbing - May 18, 2019, 12:30-2:30 p.m. at Adventure Rock Milwaukee
- Tailgate & Brewer’s Game - June 25, 2019 at Miller Park
2020 Pediatric, Adolescent, and Young Adult Cancer Survivorship Conference
Join us for our virtual 2020 Pediatric, Adolescent, and Young Adult Cancer Survivorship Conference: 21st Century Survivorship: Linking innovative technology to survivorship care.
This conference will be held virtually on October 16th from 9am – 12:30pm.
Registration Now Open - Register Here
In 2018 we held our first biannual Pediatric, Adolescent and Young Adult Cancer Survivorship Conference: My Patient Had Cancer, Now What?
This collaboration between primary care providers and the cancer center was held on October 12, 2018. Going forward, it will be held every other year.
Contact us at: email@example.com
Visit the National Cancer Institute's AYA cancer webpage
Search AYA clinical trials nationally at: ClinicalTrials.gov
Search all cancer clinical trials at Children's Hospital of Wisconsin
Search all cancer clinical trials at Froedtert and the Medical College of Wisconsin
AYA Resource Booklet: