Adolescent and Young Adult (AYA) Cancer Program
A partnership of the MACC Fund Center at Children's Hospital of Wisconsin and the Froedtert & MCW Cancer Center, the AYA Cancer Program mission is to contribute to improved survival rates and quality of life across the cancer care continuum for AYA cancer survivors in Wisconsin, and throughout the region, through the development of an AYA Cancer Program of Excellence.
AYA Program Objectives
Our AYA cancer program will provide you quality and supportive care resources from diagnosis through survivorship, with focus on:
• Clinical trial education;
• Fertility preservation counseling;
• Health insurance/financial counseling;
• Psychosocial support and spiritual care;
• Transition to survivorship services
Provide AYA education to all healthcare professionals.
Build a strong, interdisciplinary AYA Research Program and improve access to clinical trials for AYA patients.
Community Outreach & Collaboration
Serve as an AYA Cancer Center of Excellence for southeastern Wisconsin, the state, the region and beyond and support the AYA cancer community by partnering with local, regional, and national organizations and programs to support AYAs, including activities like the Young Adult Oncology Group (YAOG).
Other Resources and Information
Open the sections for more information, documents and links.
Fertility Preservation & Sexual Health Educational Resources
- Sexual Health During Cancer Treatment
- AYA Fertility Handout
- AYA-Fertility Preservation (females)
- AYA Sperm Cryo Preservation (male)
- AYA Program Satisfaction Survey
Links to AYA Education Modules
Login and search for these modules:
- Adolescent & Young Adult (AYA) Cancer Care Awareness: A Unique Population (EDS1600753)
- Adolescent & Young Adult (AYA) Considerations in Cancer Treatment (EDS1700044)
- Adolescent & Young Adult (AYA) Practical and Emotional Needs (EDS1700045)
Login and search for these modules:
- Adolescent & Young Adult (AYA) Cancer Care Awareness: A Unique Population (GNED60549)
- Adolescent & Young Adult (AYA) Considerations in Cancer Treatment (GNED60551)
- Adolescent & Young Adult (AYA) Practical and Emotional Needs (GNED60550)
Current AYA Cancer Supportive Care Trials at Children’s Hospital of Wisconsin and Froedtert and the Medical College of Wisconsin:
1. Fatigue in Young Adults with Cancer: Step-up Intervention for Self-Management of Fatigue in Young Adults Receiving Chemotherapy (NIH P20 Exploratory grant P20NRO15339; PI: Jeanne Erickson, PhD & Co-Is: Drs. Ann Swartz, Melinda Stolley, John Charlson, Kristin Bingen).
The goal of this study is to evaluate a 12-week physical activity intervention to improve self-management of fatigue in AYAs receiving chemotherapy. The intervention will include components of education, negotiated collaboration to set individual physical activity goals during chemotherapy cycles, and tools for self-monitoring physical activity. Open at CHW and Froedtert.
- Bingen, K., Hoag, J., & Karst, J. (2017, Feb.). Development of an adolescent and young adult (AYA) cancer program: Meeting the needs of a vulnerable age group from diagnosis through transition to survivorship. Symposium presentation, Advances in clinical care models for transitioning adolescent/young adult patients with cancer, at the 14th annual American Psychosocial Oncology Society Conference in Orlando, Florida.
- Erickson, J.M., Bingen, K., & Charlson, J. (2017, April). Physical activity preferences and needs of adolescents and young adults with cancer during chemotherapy. Poster session at the Midwest Nursing Research Society Conference in Minneapolis, MN.
- Jemison, L., Erlitz, T., Myers, K., Bingen K., & Charlson, J. (2017, May). Developing an adolescent and young adult cancer pilot program: A multidisciplinary collaboration between a pediatric and adult cancer program. Poster session presented at the Oncology Nursing Society Conference, Denver, Colorado.
First Annual Pediatric, Adolescent and Young Adult Cancer Survivorship Conference: My Patient Had Cancer, Now What?
This collaboration between primary care providers and the cancer center was held on October 12, 2018. Going forward, it will be held every other year. See you in 2020!