Currently Enrolling Study
Retrophin CTX Prevalence Cataract Study
Purpose of study:
The purpose of this study is to understand how common a condition called CTX is in people who have been diagnosed with cataract, or a clouding of the lens, in both eyes when they were younger.
What is CTX?
CTX is a rare but treatable condition where people do not make bile acids normally. CTX may be associated with cataracts that were diagnosed at a young age and has an unknown cause.
What is involved in this study?
Potential study participants will be asked to come to the Froedtert & the Medical College of Wisconsin Eye Institute for a one-time study visit, which should take about one hour. During the visit, you will be asked to review a consent form that describes the study in further detail and if you decided to join the study, you will be asked to sign the consent form. A health history, current medications taken and health history of your family members will be obtained. Additionally, 1 tube of blood and a urine sample will be taken to test for certain substances that may indicate you have CTX.
A total of about 500 people, both children and adults are expected to participate in this study nationally, including about 30 at Froedtert & the Medical College of Wisconsin Eye Institute and Children’s Hospital of Wisconsin.
Compensation:
Research participants will receive a $50 stipend for the study visit.
You may be eligible to participate in this study if you meet these criteria.
- A doctor has told you that you have cataracts in both eyes, and the cause is unknown.
- You were between 2 to 21 years old at the time you were diagnosed with cataracts in both eyes.
More Information:
Additional information about the Retrophin CTX Prevalence Cataract study can be found at ClinicalTrials.gov.
Contact Katie McKenney with questions. (414) 955-7866 or email
IRB Approval: CHW16/127, 10/07/2017
More Information
-
I AM INTERESTED
Learn More
Contact Ophthalmology
For patient care inquires, call us at (414) 955-2020 or use MyChart. Email is for research and education inquiries only.
Eye Institute Location
925 N. 87th St.
Milwaukee, WI 53226
Appointments
(414) 955-2020
(414) 955-6166 (fax)
Continuing Medical Education
Mary Schafer
(414) 955-7840
Medical Education Coordinator
Leslie Bencivenga
lbencive@mcw.edu or Ophth-Residency@mcw.edu
Director of Development - Ophthalmology
Gina Vrtochnick
(414) 805-3309
Refer to Us - Consultation requests
Fax to (414) 955-0136
Emergent Requests
Within 48 hours call
(414) 955-2020
Research
Vesper Williams
(414) 955-7862
Advanced Ocular Imaging Program
(414) 955-2647
Communications
Juliann Kelly
