Medical College of Wisconsin Ophthalmology and Visual Sciences Research Study - U24: Developing Cone-Dominant Retinal Disease Models

Purpose of study:

This project is being done to characterize photoreceptor structure in individuals with retinal detachments, inherited retinal degenerations, and those with normal vision using a variety of retinal imaging tools.

What is an Inherited Retinal Degeneration?

An Inherited Retinal Degeneration is an eye condition that causes vision loss due to death of photoreceptors.

What is a retinal detachment?

A retinal detachment is an eye condition caused by the separation of retina from its normal position at the back of the eye.

What is involved?

If you have a retinal detachment, you will be in this study for about 1 day. If you have inherited retinal degeneration, you will be in this study for about 2 years with 1 visit per year. If you have normal vision, you will be in the study for about 1 day, but may be re-contacted if the need arises. Study visits will include questionnaires, an eye exam, color and vision testing, adaptive optics imaging, and clinical imaging.

Compensation:

Research volunteers will receive $25/hour for each study visit that is completed.

You may be eligible to participate in this study if you meet these criteria.

You have been told by a doctor that you have inherited retinal degeneration.
You have been told by a doctor that you have retinal detachment.
You have normal vision.
You meet the diagnostic criteria for the study (to be determined by your study doctor).
You are 7 years of age or older.

More Information:

Contact Kaitlin Goetschel with questions. (414) 955-8068 or kgoetschel@mcw.edu

IRB Approval: PRO00036249

Approval Date 1/28/2020

Your Information

Name *

Email address *

Phone Number

Family member's name (if applicable)

Which condition best describes you? * Inherited Retinal Degeneration Normal Vision Retinal Detachment

If you selected retinal detachment, what was your date of surgery?

Have you previously been in a research study at the Eye Institute? * Yes No

By submitting this form, I acknowledge that I would like to be contacted about the U24 Study and understand that submission of this form in no way obligates me to participate in this study.